For most of my life, I thought epilepsy was just about the seizures.

The visible ones. The medical ones.
The ones doctors measured and tried to manage.

But what no one really explained — and what took me years to understand — is that the body doesn’t just hold seizures.
It holds tension.
It holds survival.
It holds fear.

And all of that can make seizures feel worse.

The Invisible Load

Living with epilepsy can feel like you’re constantly waiting for something to go wrong.

Your body might still be bracing even when you’re not having a seizure.
Your thoughts racing.
Your nervous system always “on.”

For me, that looked like:

 

• • Daily auras that made me feel like I was about to fall through the floor

• • Constant tension in my chest and jaw

• • Feeling like my body was never fully safe — even on calm days

Over time, I began to realise:
It wasn’t always the seizure itself that was overwhelming —
It was the emotional overload wrapped around it.

The Body Feels Everything

Stress. Fear. Past trauma. Emotional survival.
It all sits in the body.

I had been through neurosurgeries.
I had tried medications.
I even had a VNS device implanted (and later removed because of discomfort).
But what no doctor told me was how important emotional safety was.

If your nervous system never feels safe, it stays in fight, flight, or freeze.
And that kind of internal storm can make the brain more reactive — not less.

What Helped Me Calm It (and What Might Help You)

Here’s what changed for me — gently, over time:

 

• • I began working with my emotional triggers, not ignoring them

• • I used calming practices that helped regulate my nervous system naturally

• • I released fear from my body slowly — not through force, but through compassion

• • I began to see that emotional healing was not a luxury — it was a path to freedom

I no longer feared my body.
And as I softened, the daily auras that once ruled my life… began to ease.
Some days now, they don’t come at all.

What I Want You to Know

If you live with epilepsy and feel emotionally overloaded —
you are not “too sensitive.”
You are not broken.
And this is not all in your head.

Your body may be asking to feel safe again.
To soften.
To release what it’s been holding for years.

Healing doesn’t always come from pushing harder.
Sometimes, it comes from learning to trust your body again — gently, patiently, and with deep respect.

 

Ready to explore what calming support could look like for you?